Donate Online

Sian's Mum - Living with Methylmalonic Acidaemia

Sian’s mum Sue recently started writing a blog about the highs and lows of being a mum to a teenager with a metabolic disease, chronic renal failure and a disability.

The blog is an amazing insight not JUST into Sian’s story, but the story of a family living with Methylmalonic Acidaema.

For the family there have been many highs and just as many lows but in the words of Steven Tyler “Life is a journey not a destination”.

Please read Sue's inspirational blog at the link below.

Sue's Blog

News

The Three Peak Challenge

Alex Groom, James Otway, Tom Brown, John Hogg, Neil Harris have taken on the challenge of climbing the Ben Nevis, Snowdon and Scaffel Pike all within 24 hours.   Read More


The most important thing in illness is never to lose heart.The most important thing in illness is never to lose heart.

Nikolai Lenin